CRANIOSYNOSTOSIS
For a medical explanation of this syndrome, please see the Crouzon Support Network’s web site at http://www.crouzon.org.
- Staff | Cleft Palate Foundation
- EB Awareness
- Betsy Wilson Speaks about Let's Face It at the University of Michigan
- 'My second life' - EagleTribune.com, North Andover, MA
- Angelman syndrome (craniofacial tags)
- Prader-Willi syndrome (craniofacial tags)
- Van Der Woude syndrome (craniofacial tags)
- Russell Silver syndrome (craniofacial tags)
- Coffin-Lowry syndrome (craniofacial tags) Coffin-Lowry syndrome (CLS) is characterized by severe to profound mental retardation in males; intellect ranges from normal to profoundly retarded in heterozygous females. The facial appearance is characteristic in the affected, older male child or adult
- Beckwith-Wiedemann syndrome (craniofacial tags) Beckwith-Wiedemann syndrome (BWS) is a disorder of growth characterized by macrosomia (large body size), macroglossia, visceromegaly, embryonal tumors (e.g., Wilms tumor, hepatoblastoma, neuroblastoma, rhabdomyosarcoma), omphalocele, neonatal hypoglycemia
- American Academy of Craniofacial Pain : Home Page
- Dr. Z goes to Kenya
- Dermatology Patient Support & Advocacy Groups
- Nevus Network
- Mental Help Net - Self-Help Sourcebook OnLine
- Phoenix Phoenix Society for Burn Survivors
- NationMaster - Mortality Statistics > Cleft palate by country
- The Misshapen Head -- Maugans 110 (1): 166 -- Pediatrics
- (apert OR craniosynostosis OR crouzon OR kabuki OR treacher OR cleft OR craniofacial) ("summer camp" OR "summer program" OR "residential camp" OR "day camp" OR "overnight camp" OR "study camp" OR "art camp" OR "summer school") - Google Search
- To Die Well by Dr. Sidney Wanzer and Dr. Joseph Glenmullen
- Google News Search: (craniofacial OR "facial difference" OR "cleft palate" OR "cleft lip" OR "birth defects") - Google News
- Craniofacial Team - My Child Has - Children's Hospital Boston
- Hemifacial Microsomia - My Child Has - Children's Hospital Boston
- Me and My Orbit: Recommended Reading
- bullyingdoctor "Written with alternate chapters for adults and children, the book provides a valuable self-help guide for families to understand the reasons why their children are being subjected to bullying ? and the resources to help them stop it."
- Oral Cancer Foundation 2007
- GeneReviews: Muenke Syndrome With funding from the NIH, developed by the University of Washington, Seattle. Includes differential diagnosis and management, as well as much more.
- Genes and Disease. Table of Contents
- eMedicine - Congenital Syndromes : Article by Ian Jackson, MD
- Waardenburg Syndrome Support "Waardenburg Syndrome was identified in 1951 by P.J. Waardenburg, a Dutch ophthalmologist who noticed that many of his patients had unique facial features and deafness." By Alice Kahn's team.
- Craniofacial Foundation of America Online book with chapters on "Clefts, Ear Reconstruction, Craniosynostosis, Orbital Reconstruction, Treacher Collins Syndrome, Nasal Reconstruction, Orthognathic Surgery, Trauma Reconstruction, and Hemifacial Microsomia."